Worship Wonder...

A Summer story about Your sweet lil Emmalee...

 Her joy and Love and faith  for the Lord Shines to all and is contagious to many

One way she loves to spend her summer is at multiple VBS sessions learning and singing about Jesus!

This week  theme Big Apple...take it to the streets

She was invited up each day with Youth pastor of a church to Lead Worship  to share her passion with others... all smiles and animated was a Worship Wonder...

 Giving God all the credit for the spirit He instilled and gifted her with

and the gifts he equips her with to use for his Glory!

A Summer highlight

Homeward Bound

although she remains sick we skip out on surgery.. she has an incredible amount of drainage and will run her typical course and cycle...We get to head home with a great plan in hand:-)

OUR Agenda

1. Sammys
2. Goodbyes
3. Flight
4. HOME SWEET HOME

A delay

Scheduled to Come Home this evening....resting in the fact God is in Control.....

My sweet Em still struggling , sick and puney...awoke with her eyes matted shut, drainage out every orfice possible and remains with yuck cough and fever.. We are zipping up to clinic to determine if she has just overwhelming amount of drainage as usual or if her tearducts are obstructed again....

meaning longer stay and surgery...  stayed tuned for delay or departure...

A purpose



After 4 years the same plan discussed over the years in/out of hospital stays,  has been implemented. The protocol and treatments mentioned all along thought to treat her effectively...and is now in Place  Gods Timeline at times seems so uncertain during the moment but you continue to Trust in Him as we are so worldly and impulsive ..yet he shows us His will in his time for a Divine purpose... primarily to grow us and use our faith to Reach others and instill Trust & Hope In Him to others...

She Finally has Her Action plan.. A real Plan of care! Treating and Preventing Her needs.

Trusting God along the way, Surrendering Her best interest to Him, Allowing God To be in Ultimate control, Following His will for us  in 6 months he has accomplished Great things thru this team He hand picked & had in Place to come together and care for her the way he willed.

More has been accomplished in these 6 months than in 7 years.

Please understand that we have no frustration or regrets but only praise and gratitude to God for every step of the way has played criticals in His will for all involved. Lives changed  and transformed, hearts touched ,connections made, hope provided, Gods Victories celebrated all to Glorify His mightiness and Holiness as Our Loving father. A true story of hope, love and Faith in action. Thank you all for being a part of this beautiful story He has used you to help write it as it all unfolded.

Grateful for Ems progress and healing but even more grateful for those who have been reached and

 impacted thru her by Him our Father!

Follow Up

Morning with Pulmonology and Testing-Em remains sick without a response to the steroids. We have been beyond blessed with her Team of doctors here in Ohio... her Pulmonologist is simply amazing and on top of things for Her care.. He leaves nothing unaddressed, a thinker,and an implementor.. he is all about

 Em's best interest.. and getting her to a place to feel well, and breathing easier which was

our goal  as Parents! Jesus the Great Physician  has carried this out for her!

After 4 years He and ENT has implemented the protocol and treatments mentioned all along thought to treat her effectively...and is now in Place!

Onto CT of her Lungs and more testing today... To evaluate Lung involvement during this 9 week  Cycle...not responsive to the steroids... starting antibiotics to be nebulized and continue medicine washes.

Em all smiles and up to herself passing on smiles and hugs and sharing her Joy!

Dinner at Darnellas

Friday Night Family Night

What a Blessing! Darnella came to pick us up to spend the evening with her and her family while she made us dinner! We went Grocery shopping and then visited. Em played with her 3 little cousins. What a delightful moment... watching the 3 of them imagine pretend and play their hearts out. They had tea party , played cafe and so much more. Emmalee was so  grateful! Dinner was delicious and shared Fun family time.

Darnella made us a true southern cookin...

 Fried Chicken, Fried Corn(oh my stars), mashed Potaoes and Gravy oh and southern Sweet tea

 It is a true blessing to be welcomed and invited into their home and treated and embraced  as their family and loved in such a way Only God can provide..Thank you Lord for the many Blessings and Provisions

Sugar is A Booger

Well more revealed  Em has been at Gi all morning... Explanation for tummy discomfort and distension

 what a blessing to now be able to Help her with just a few food changes and its a fix!

Sugar is a Booger to her....

6Mo Noseversary

What A Day.. we are now 6 months out from Her Big surgery and new way of Living and BREATHING! For the Last 4 years  The Doctors at Texas Childrens and now here at Cleveland have much discussed treatment options for Miss Em... but never implemented until NOW...She has been now placed on the treatment plan first mentioned 4 years ago. It is a prevenitive plan longterm that consists of medicines to help her with her ineffective airway. It should help manage the obstructions in her nose from polyps and inflammation and minimize the amout of infection from accumulated congestion in her sinuses and Lungs from inability of clearance of her airways! God is Amazing to us and we shall continue in Trusting in Him His way and will for Her Life! Now thats a celebration of one of His many Victories in Our Life!

What a noseversary!!

God Is GOOOOOD....

Words of Lil Em on Thursday after Her big ENT  appt..... After a long week, Dr dr dr and multiple tests Waiting for when the surgery date is going to be We walked into Ents office to be informed Her most problematic R side with multiple polyps had IMPROVED   yes IMPROVED  thank you Great Physician. Still left with some Polyps but She was confident they in Time would reduce post infection. And the Words of the ENT   " NO   Surgery " this time!!!!  Praise Jesus! Hugs went all around! They have now after several visits are understanding what her body DOES  and how to treat her Specifically!
 So walking out down hallway right out of the scope room ( Another scope like a trooper)
Em says to me with a bright Smile " God is Goood, up top Mom" for a yes high 5.
 We are ever so thankful for the progress they have made in Her care !
 Blessings and Beyond!

Super Sick

When leaving last in april Em started getting her normal  congestion and was thought to be the start of a new round of infeciton.....and well  fighting some sort of infection over the last 8 weeks and not improving but progressing to her Lungs... This is the INFAMOUS cycle she has to endure... now having high fevers,  harsh chest cough and drainage out the wazoo  tired and puney.. Pulmonology  grateful today to have a better understanding with what  is going on with her airway and just how ineffective it is...  He placed her on another round of steroids to evaluate effectiveness... Chest x-ray  more testing and follow up next week...

still to come GI and Endocrinology Today a Go Go day

 We are just that much closer in Gods will and plans for her  and give HIM ALL THE PRAISE    for getting us this far in the process.... She has been going thru this cycle for 7 years now

Gods Word of comfort

I have carefully mapped out every inch of your journey throught this day, even though much of it may feel haphazzard. because the world is in fallen condition things aleays seem to be unraveling around the edges. Expect to find trouble in this day. At the same time, trust that my way is perfect even in the midst of such messy imperfection. Stay conscious of me as you go through this day remembering that I never leave your side.  let the Holy Spirit giuide you step by step... protecting you from unecessary trials and equipping you to get through whatever must be endured. As you trudge through keep your mind in heavenly places with me. Thus the Light of My Presence shines on you giving you Peace and Joy that circumstancrs cannot touch....

Psalm 18:30  Isaiah 41:13

We're Back...

We flew back in to Ohio Today around 2ish. Beautiful Weather welcomed us upon arrival. Sunny skies, Warmth with a cool breeze... was wonderful! Welcomed By Our HI Family as always with smiles hugs and open arms. Em jumped out of the taxi and into their arms. What an incredible blessing to be greeted with love from all of them! My Girl happy all smiles and giggles to be with them even with 101.5 Fever.....

She is soooo raziiliant... Thank YOu Lord Sweet Jesus!