I will praise the LORD, who counsels me; even at night my heart instructs me.
I keep my eyes always on the LORD. With him at my right hand, I will not be shaken.
Psalm 16:7-8I keep my eyes always on the LORD. With him at my right hand, I will not be shaken.
We wanted to update you all on Em's status and all that's taking place in Ohio. They are now initiating several different treatments for multiple systems and monitoring for therapeutic response and effectiveness.
Ohio Dr.'s are working towards a management plan now in the areas of Ent ,GI, pulmonology, immunology and now endocrinology. Her procedures and tests have shown some deficiencies and impairment. It has taken us 4 months this year but 6 years overall to finally be able to understand a bit better what is going on to be able to treat her. Between TCH and now Ohio they have discussed treatment for sometime and now it is being initiated. Things that were mentioned to us over 4 years ago.
Emmalee will be on primarily steroid treatment with antibiotics periods at a time with medicine added to her nasal irrigations as a wash. Life long to control the inflamation, infection polyp cycle she struggles with. With recent change of direction of care and new info. depending on ger bodily response will determine the amount of surgical proceedures. we have been informed their is no cure as this will continue to repeat itself. We will continue to pray for Gods plans to be as He wills.
As He is the Great Physician
We learned this week and early this morning of some impairment and deficiencies
as well that She will also need to be replaced Longterm.
They are currently developing a Plan of care for treatment to be started.
This will entail Immunological and endocrinology management.
Immunology in the works and we go and see endocrinology Next week.
We were very impressed at the fact that I have been a broken record almost in mentioning things Em experences. This week once more I was sharing some random info when her immunologist started wriitng alot and was processing it further. From there he stepped out to consult another discipline of medicine and orderd necessary tests. Based on that He called this morning with results informing me in talking with The doctor of expertise "an impaired result would be < 10 and Your daughter emmalee is depleted at 1 and will need to be replaced." This further explaing some of her symptoms I have been sharing for sometime!
I have nothing but a heart filled with Praise for the Lord He is in control!
The LORD is my strength and my defense ; he has become my salvation. He is my God, and I will praise him, my father’s God, and I will exalt him.
Exodus 15:1-3
Exodus 15:1-3
No comments:
Post a Comment