Jesus Calling

My  Daily Devotional read.........

Come to Me with empty hands and an open heart, ready to receive abundant blessings. I know the depth and breadth of your neediness. Your life-path has been difficult, draining you of strength. Come to Me for nurture. Let me fill you with My Presence: I in you, and you in Me.

My Power flows most freely into weak ones aware of their need for Me. Faltering steps of dependence are not lack of faith; they are links to My Presence.

                                             John 17:20-23; Isaiah 40:29-31

Oh I cannot describe how my heart lit up upon reading this just now, amazed at the most perfect words of encouragement and Oh & how He so knew my Heart of need!

Oh what an immensely Loving God you are!! Thank you  Heavenly Father I praise you for  providing me with your up most Divine words. I am breathless in awe   just all the more. I love the closeness you provide and personable attentiveness your given me! Amen!

HAPPY PUMKIN DAY!!!!!!!

 WISHING YOU MANY  TREATS TODAY

SENDING YOU ALL PUMKIN HUGS...XOXO



SUPER STEVE sends Wonder Will to our Rescue.....

Leaving the Trick or treat fun at the Zoo  We had called and Our driver didnt show! Once again Our Holiday Inn Family was there. We called them and  Super Steve & Danielle Diva made sure  Wonder Limo Will was in route... It is sooo nice to be cared for. Us sheltered Texans are not used to taxis, buses and Urban Ways...but boy have Em and I been URBANIZED  in a week.... Such exposure for us!

  TRUE INNER CITY ADVENTURES

BOO AT THE CLEVELAND ZOO...........

Boo At the Cleveland ZOO

Our Family God placed along our journey Here..... Blessings

 We are staying at the Holiday in express Downtown. We are minutes from  the Clinic. From the point of arrival we had been in prayer for God to continue to bless  us with the right people in place throughout our stay. He  more than took care of that for us.

 We arrived and Stephen was  at the front desk to welcome us in. He immediately noticed we would be here awhile  and took care of us!! He had placed us in a great room with space .... a suite! Even more blessings!!!! Amazing.( and they say people in the North are not  patient or nice. That is a myth for us!!! ) That mold is brokenThey all have been extremely   generous and compassionate to us! They have beyond extened the hand of love for us!

 Levelle has escorted us to cvs,  Stephen too many to list very protective for us, making arrangements and just taking care of our needs. Bubbles, cocoa, rides, room, dining , driving arrangements they are always  there!!!! Miss Danielle  has been soo warm and loving as well. emmalee has really warmed up to  all of them and so  have I . They are our ohio family and are enjoying all of them! ...... and the List goes on

 God has placed us in Good Hands and that is A great feeling being so far from Home.

Thank you Holiday Inn Family! We love you All!

 Thanks for loving on my girl and supporting us Both  thru this time!

We are Family........

Called My sister patty for her 38th birthday at 12 am always like to be first!!!!  Of course I was awake..... as you all know my nightime schedule!She is going out for seafood for her special day with her girl!  Nothing like your Family to call and visit and love and support us! Spent the morning on the phone with my Special sister and then my mom. they were all checking in on us! 

 Thank you Mom  Dad and Patty and lilC

EXTENDED STAY.......

 Today  they   decided first and foremost they needed to put her airway top priority.( other  concerns to be addressed later) Being that her nasal airway is occluded by her structure ( and has been). They need to do reconstructive sinus surgery. This is an invasive detailed 6hr. procedure that consist of  a very tedious approach that will be significant to her breathing. As of now she has been having extreme difficulty moving air, more so  at night because she doesn't mouth breathe. This sends her into a great deal of distress. There is a possibility this may alleviate her need for her bipap as well, depending on the central apnea ( addressed later) Since this structural abnormality was causing her to obstruct in sleep!

They are going to schedule her for....

 NOVEMBER 9, 2010 Tuesday

 They will also do a couple other thins during surgery for diagnostics adding on an hr. or so. This will also extend our stay for another 6 weeks. Post-op  they will need to go back in  surgically for debriedments to assure proper healing., over the next post op 3-4 weeks.

Tommy and I have know for awhile she needed help for  many helpless nights and weeks  but are in prayer that we are following Gods path and remain in His will with this surgery.God has given us much affirmation thru other dr.'s and people. This is a very invasive procedure and with her being little still do not want to compromise her in the years to come. However it has been explained to us the significant need for this for her to breathe. We  know Gods plans are in place. Back home it was mentioned as well. We came for  a management plan to help her  but tried to prepare our hearts for all that was to come. Relying solely on Gods strenght and not my own. We are continuing to trust in the Lord and His plans. Please being praying for  continual Peace   with all that is ahead.

Praises for Gods Plans

In his heart a man plans his course, but the LORD determines his steps.
Proverbs 16:8-10

Commit to the LORD whatever you do, and your plans will succeed.
Proverbs 16:2-4

 For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future.
Jeremiah 29: 10-12

Today we were at the hospital all day once again moving in the right direction. Em had a hard emotional day. Extra sensitive, just not feeling well, lots of tears today.  She had  a day filled with walking all over, tests, bloodwork and shots. She is doing so good  she is amazing to deal with all that she goes thru. She is an  example of Gods strength and persaverance and an inspiraton to me!

PLANS>>>>

 This week they already have provided  a plan of care for her. Our only prayer and goal of coming here was to obtain a better way to care for Our sweet pea. With discernment from God we came here for a well plan of care as a prevenitive for her and a management plan for when sick. ACCOMPLISHED!

 They were helped ....... because they cried out to him during the battle. He answered their prayers, because they trusted in him. 1 Chronicles 5:20

 Their ideas are amazing! Some of the things they have mentioned are so easy and noninvasive. Like her need for prevenitive low dose antibiotics, sinus rinses with antibiotics, breathing treatments with antibiotics for her Lungs, Asthma plan helps with pneumonis/ Bronchitis..... wonders of options for our Lil Girl Here!!!!

 With that all in place She did hsve  aSinus CT and a scope with video done this week. Today we were called back in to see ENT. They are so on top of things. They also show a genuine level of concern for her. Keep Praying Prayer Warriors!

Ent walked me thru her CT scan explaining in detail. She then shared with me that after other surica lintervention she showed no improvement....  Reason being is her structural anatomy is abnormal . With past sinus surgery her sinuses were opened to drain but have been unable to because of the structural  component

 She essentially has little to no opening to move air causing her to obstruct especially during sleep and secondly her inability to drain leaving her with prolonged infection. She confidently assured me that this surgery,yet tedious & invasive, in itself was going to contribute to a whloe new way of Life for her when healed. Praises to Our Loving compassionate Father Above who has shown us every step of the way while embracing us with His ultimate peace and comfort!

In spreading the gospel of Christ to strengthen and encourage you in your Faith. so thatno one would be unsettled by these trials. You know quite well that we were destined for them

1 Thessaloninans 3:2-3

Did I Hibernate?

With it freezing cold here and after the sleep we got it sure felt like it.........

Off we go to another clinic filled day  Appointments Tests  xrays and bloodwork....

You chart the path ahead me and tell me where to stop and rest.
 every moment you know where I am.Psalm 139:3

We opened one of our many cards of encouragement and HEARD   God is in CONTROL singing to us  Love it.....

Mountains are Moving

We are exhausted we walked to and from all over the big campus rushing from one to the next between 8- 5 a very full day. We might of stopped for a 15 min. lunch quickly . With more to do tomorrow.

 They keep us in one appointment being thorough of course for 2-3 hours. And  that's with the Doctor.

Then the doctor refers or order tests between a tight schedule. All increased efforts to get a plan for her.

Gods plan all along. He knew the people and what it was going to take and how He was going to achieve that. Certainly not me chasing Dr.'s down at TCH. ( I've tried Gods plans always better) We just have to trust  and wait for His timing of His amazing plans.  The circumstances while waiting are how He grows us and our relationship with Him becomes richly intimate.

Great things are happening for our little girl.  They are compassionate for her needs, concerned for the severity, and assertive in getting her treatment. That in itself is God Moving Mountains and getting us  to the other side. Where  he desires us to be.To Prosper.

 Man  is it cold up here! We are all layered in our outerwear and you can still feel the brisk winds. Love Texas weather. We woke up this morning  with Emmalee having a rough start. She  was not having a very feel good day. She had tons of drainage pouring out everywhere.  We  headed to the  clinic for a very over scheduled day with alot of appointments.

 Our first appointment was the most important one   our trip being with ENT for her nose.

 It was rough for her  they took cultures of her nose & then scoped her nose in the office awake. tears tears and more tears in all her life I have never heard her cry so hard. I stepped out heart heavy for her and had tears wealling up in my eyes. This provided them with the most definitive information they needed. They took a video of the inside of her nose, I had tears streaming my face in disbelief.  I though i knew but nothing on that level it was severe.  Basically no opening at ALL on either side just alot of nose. The Dr. turned and reiterated  how she is uncertain of  "how she is moving any air????"  she poke of 2 big things going on with Emmalee Her apnea really being something more that they wanted to workup. and secondly Her Infamous Nose....She mentioned her nose being attributed to anatomy. She does not have the capability to drain because of it. They feel like something more is contributing to all of this due to the no response to past surgeries.

more to come alot happened today .....

Looking Forward to All God Has planned Today.....

Commit to the LORD whatever you do, and your plans will succeed.
Proverbs 16:2-4"The Lord bless you and keep you; The Lord make His face shine upon you. And be gracious to you; The Lord turn his face toward you, And give you peace." Numbers 6:24-26

 I am a richly blessed woman. I have a wonderful and loving husband, an amazing  beautiful  daughter and blessings of Friends and Family that surround us that light up my life so completely.

We have an incredibly busy all dayer at the hospital today. Many appointments and tests. Please keep us in your prayers as God continues to guide us, walk beside us and Bless us. Things are going well just as God intends for us to. Many praises and thanks to Our Loving Father!!!

Smiles and Hugs from Afar

Thank You friends and Family!

We have smiled and enjoyed opening the love, hugs and smiles you have sent our way!

Each day emmalee and I open a card and then we set them up on a ledge to see each day!

We feel surrounded by all of you and Feel your love and support!

The scriptures and endearing words of encouragement leave us feeling blessed all the more by all of you!

Thank you!

All around us are things from all of you  we have our brunch decorations up, cards, and " scripture Sticky's"

Cleveland Clinic shows Compassion......

This is the confidence we have in Approaching God. that if we ask anything according to His wil, He hears us. And if He hears us whatever we ask- we know we have what we asked of Him.

1John 14-15

update later....

Pepsi vs Coke??????

After a  full day all around the Clinic a city within a city of   a city!!! In search of a diet coke or a sweet tea any tea...... Please  any...... Nope just Pepsi that whole Nothern thing. On top of that  Cleveland Clinic doesnt support Diet drinks , caffine or Chocolate 

WHAAAAT... Really......Seriously.....

 Then I went into Cvs right before closing at 7....... to find arizona Tea and Dirt Coke

so I  piled it in the cart and Headed for the Hotel for a refreshing  beverage! 

WHOOOOOOOHOOOOOOO! SCORE................

Peaceful Morning...

After  a restful sleep .. We woke up and started our morning in Prayer and Gods Word Together. God armed me with His Peace and comfort thru His word for the day....

In my heart He places His loving words.....

Finally, be strong in the Lord and in His mighty power. Put on the full armor of God so that you can take your stand against the devil's schemes.For our struggle is not against flesh and blood against flesh and blood, but against the rulers, against the authorties, against the powers

Ephesians 6:10-12

Flying on Eagles Wings... On our Way

Have I not commanded you? Be strong and courageous. Do not be terrified, do not be discouraged, for the Lord your God will be with you whereever you go.  Joshua 1:9

 but those who hope in the LORD will renew their strength.
       They will soar on wings like eagles;        they will run and not grow weary,  they will walk and not be faint.

Isaiah 40:31

Today em and I woke to embark on this new endeavor of a journey God has planned for us.....
We were loaded with a-z of things we may need. We headed to Hobby for an experience of a lifetime for em and I. Luggage piled high, 2 carryons each and pillow pet and special animals in arms.
We checked our bags  a couple max the wt. limit so we  opened and switched some things around
 while in line. Fun Fun Fun.... LOL quite comical actually....
We ventured on to security taking off our shoes  loading the bins, bippap gets special testing.....
Then take the long hike across the gates to wait. Em enjoyed the walk along belts
Em was so excited she could not wait for the flight! Our flight call is up
"now boarding  flight 1531 to Chicago" seats A 1-30
And away we go...
She boarded the plane all smiles clanking her carry on along catching on the seats to find the just right window view.... as I followed behind with heavy bags waiting with a smile for her.
She  situated herself with all her things and enjoyed the take off with even a brighter smile latched onto my arm. Looking out the window  enjoying Gods beautiful amazing world .
I flight she watched a movie requested Peanuts and Sprite, used the potty
What an experience for my girl!
We landed  in Chicago and raced across the airport to our gate area,
 walked back through a crowded airport for some food.
We then boarded once more to get to Cleveland around 6:30 Some difficulty trying to get arrangements to Hotel. All over airport and back again loading and unloading a cart full of luggage to get to the right place.
 Em to no surprise trooped along carring a lot without one COMPLAINT!  hand and hand helping  her Mom ! Finally a very nice Officer helps us and escorts us along....
 By 9 we were on our way in our Very first CRAZY Taxi Ride!

Blessings and Provisions.......

 Our Blessings and Provisions of  Our story
We continually remember before our God and Father your work produced by faith your labor prompted by love and your endurance inspired by hope in Our Lord Jesus Christ. 1 Thessalonians 1:3
Thank you to ALL of you!

 

We all know and read that God s better intentions come from all trials and circumstances. The last 6 years have not always been a cakewalk for us. The biggest lesson for most of us thru daily struggles is that if things were easy we would be self sufficient and not grow in our relationship with the Lord.
 He is our provider in every aspect of Life.

 Walking in Faith and Trusting the last 6 years my little girl has struggled to breathe due to airway issues. Dr. after Dr. , failed medicine management, admissions and multiple surgeries she had little to know improvement.They have told me for years to reposition her, elevate her, stimulate her throughout the night. So year after year night after night with Gods grace have carried that out. Now on October 1 her doctors informed us that they were not able to provide her anymore medical management. Prompting us to look into other centers.  .That weekend I was on bended knee in continuous prayer as I watched over her sleeping for guidance and direction, surrendering to Him all control.
  That next Tuesday we were prompted to head for  OHIO....

   

. My friends my sisters in Christ My Care group, and ministry ....

Our prayer warriors have lifted us up in love and support all along the way.

 Much love, hugs smiles tears encouragement, hospital visits ding dong dashes form all of them simply showing Gods LOVE first and foremost!!!!

I am convinced God has been able to work thru Emmalee my amazing little girl to reach many of His people with her love /focus for Jesus and her story. With  all that she endures the story and impact of Gods mightiness, Love and provisions continue....

 

This past week in less than 5 days  Our Friends/ Care group had been pretty sneaky( as they know me all to well) and BUSY! They stood  united in Faith and took it completely

 to" JC" (something I always say to them) and stepped into action for us and allowed God to use them  to Provide for us  Blessing us all the more. I shared with a couple of them at care group on a Monday  prior Our need for  a center for Praise/ Prayer time. They generated emails, face book and texts blocking me from the entire thing sharing our story with others and OUR NEED. From there God ran with it by them Honoring His call and love for others. All His plans in place to provide the way. By Thursday night they had received bake goods, Garage sale items and donations from  all over People they knew and didn't know. Some of them went around with a truck thru neighborhoods collecting all the more  to RAISE MONEY for us to have some expenses covered. Their prayers and goals started with airfare for 800$ God  said ok done! then they thought Air and Hotel would be great God once again said Done!  They worked and worked and Prayed and Prayed  up until Friday and Saturday for the Garage Sale and Bake Sale.  I had no idea any of this was taking place. I had received many calls and prayers everyone was communicating and all Fired up. I would share my  experiences and tears/ how emotional I was with how God was working in my life, but still had no clue what they all had been up to. I continued to make arrangements and update the girls as it all unfolded. Celebrating Gods works and Victories He had shown me.
 During this time God continued to show me daily affirmations  that this was His plans for us. People I encountered  would confirm..............All kinds of calls People I didn't know offering Help,
 how excellent the center was , random people called discount tickets, round-trip tickets,
Dr.s they knew, Family in Ohio, smooth process appointments early within a week .. All Blessings

 

  All I knew was the Sunday before we  were scheduled to fly out we HAD to be at A friends house for all our friends to see us off with a brunch. Knowing them and their hearts they knew I would not be as accepting of all of that so they put stipulations for me to be there. Thinking  hugs prayer goodies for em and food and fellowship, Truly Lifting us up before leaving being they were going to be unable to drop in on us at the Hospital.  Well that and so much more to my SURPRISE !!! My daughter and I had  arrived with tears streaming and with each greeting, hug, face and all the decorations I had broken completely down with tears in awwwe. One of our great friends during one hospital stay had shared  with  Em F.R.O.G  Fully Rely on God and My little girl has shared that and carried that all the days since. All The decorations were Fully  Rely On God. Frogs cake our fave foods.... They then asked us to sit on the couch and the tears started again with overwhelming grattitude with all their words  and actions...

They had gathered necessities and goodies for Em and I to take with us, Put together a Binder for all her medical info and Journey. But then They tried to give a speech and this attemp went thru a coupl of friends due to tears and emotions they shared all they had been up to and how they wanted to Bless us and support us in Our endeavors to get our little Girl the help she needed. They handed me a box to unwrap that had  all the blessings and efforts of the fruit of their Love for us $ 3500  to cover expenses!!!
How amazing to see God in action that way and al along.
 In  One week  God used each and everyone of them to PROVIDE for us!!!

That in itself is Crazy Overwhelming . Unheard of! Only the Hand of God can allow that to occur for HIs Glory! When I  Left with great graatitude and astonishment.
 I backed into a car parked directly  behind the driveway.AHHHHHHH!  

(Put on the full armor of God so that you can take your stand against the devil's schemes. Ephesians 6:10-12 )

 I immediately  got emotional at the Thought that My husband was now not going to see all God has done due to the focus on the accident> I was to very emotional for the fact that all o these wonderful blessings were now partially a void for the damages. I was crying and unable to reach the friends House I was at. (exhausted after all they been up to)  A neighbor friend came to me and encouraged me  I had enough to be focusing on and would help me with the owner of the car. WHile switching insurance info and crying. My daughter keeps calling emergently, not havin the time to give to her frustrated at what had occured. I go to her and she tells me she has a check. I looked at it and it was for our insurance deductible in the amount of $ 1500.  I asked her who gave that to her and She says " THat really nice man who was Helping You" Thinking oh no I have been blessed beyond BELIEF go to return it.  His wife and him hug and reassure me that They had wanted to donate but were unsure how much at the time were glad to do that for us. The said they couldnt imagine going thru that with their youg kids, that they had a settlement and would love to share that gift with us! Again Unheard of..... WHO DOES THAT???? ONLY GOD....GODS LOVE and EMBRACE for us We are never alone and He uses all of this FOR HIS GLORY>

 

 There hearts are Amazing and their friendships cherishable. God has put each and everyone of them im My life  to be our  extended Family. As tears stream my face I could not do Life without these incredible Godly Women. They Have been EVERYTHING to us.

 They are our Life and support and where our Love comes from.

As the Bible tells us Where does our Help come from,

( My help comes from the LORD, the Maker of heaven and earth. Psalm 121:1-3)

 He has filled our Lives with them !!!!!!
We are so extremely blessed  and supported by them and our Families.

All I knew was to Walk in Faith that trusting and being in Gods will He would part the sea. And HE soooo Did I felt HIs presence thru out this week and 1/2 experencing such peace.This has impacted us greatly and we are so appreciative for all  of them and  those involve in lifting us up in prayer and supporting us Thank you Church Family and Friends!!!  

 I kept reminding my Husband who has  a bit more difficulty TRUSTING in  Faith God's provisions and PLANS. This being the biggest part of Gods plans!! My  husband was Astounded and curious at how they pulled that off leading  His heart and eyes being softened to all of GODs Mightiness, provisions for us to Prosper and not struggle when in Faith and trust/ believe in all He does for us!

And now these three remain: faith, hope and love. But the greatest of these is love.
1 Corinthians 13:12-13

 THANK YOU FRIENDS and FAMILY!!!

 

Where Our path leads.....

But in your hearts set apart Christ as Lord. Always be prepared to give an answer to everyone who asks you to give the reason for the hope that you have. But do this with gentleness and respect
1Peter 3:15
 Year after Year praying for answers and treatments for our sweetest girl. Dr. verbalizing frustration. This year After being told That there  nothing more medically TCH could do we started to research centers over the summer , we decided to look  into for a mutltidiciplinary center to care for her and develop a treatment plan for her. Tch had plans in place up until September then  on October 1 decided there was nothing more they wanted to do for her.( meeting resistance all God closing those doors to further direct us the right dirction) In September Emmalee was struggling with her nose being obstructed ( a daily battle) mouth breathing in the daytime tired , feeling poorly, and struggling to breathe at night. Over that 1st October weekend I found myself  tears streaming face asking God to please guide me and give me the discernment I needed and to give me Direction of the proceeding steps to take...  Trusting, surrendering and Walking in pure Faith  we pressed on....

(visiting with some Dr.'s and a Pediatrician Friend God has blessed us with) With no help or plans in place we went to see her compassionate Immunologist. She  always so tender towards em's  care. She mentions to us how unacceptable this is and we need to move on to Denver for treatment. ( i had not mentioned my research efforts). Godly affirmation:). We then could see Gods hand over this and felt him steering our path. I then was given a spiritual nudge for a friend of ours who is a pediatrican and asked her for guidance and direction with her care. We visited an entire day going over the last 6 years of care and symptoms. What a vessel she was for us. This was on Tuesday  October 5. She to did research placed calls to find the right center for ems care. She to felt strongly this was being overlooked and we needed other specialties involved. After much prayer ( with all of our prayer warriors on board at this point) we narrowed it down between Duke, Boston and Cleveland. Throughout the week  with much Godly affirmations and prayer by Friday it was Cleveland thru and thru. During this time we had people mention things phone calls and  events confirming Gods plan for us.

My husband knowing this is what we need to do but concerned about how was questionable. God using me as an example of Trust and Faith to Him. I shared with him how it will happen we just have to press forwad and how certain I was that this was Gods will.

 HE WILL PROVIDE wait and see it will happen. Walking in pure FAITH!!!

 I spent the next days on phone with doctors and nurses for m the clinic and had appointments set up no flight or arrangements by this time. During this time every where we went or people we encountered Friends family all had more affirmation and peace as a gift of clarity from God. It felt so smooth to be inside Gods will I could feel Him holding me all along the way. His presence and embrace wad indescribable. A friend would call with information people they knew in Ohio, return flight tickets at discount, round trip tickets for return visits transferred in our name, A gift of money as a discipleship from a Friend in a Bible study, Hair appointment to feel good while gone  done as a gift of Love. All Gods action of love thru many of people.

 People after people God is impacting and using to BLESS US and those around us.

All for our girl to be provided the opportunity to breathe a little easier , have a management plan to feel good more days than ill, to receive care shes needed the last six years. Gods Glory is Mighty.....His love is powerful and moving and His Plans are always better than our own, He wants each of us to prosper...

CLEVELAND HERE WE COME.......OUR PATH

 Our Journey continues

And we Know that God causes EVERYTHING to work together for the good of those who Love God and are called according to His purpose. Romans 8:28

OUR STORY

OUR STORY

Seven years ago My husband and I spent some time waiting to become parents and be blessed with the gift of Parenthood. The wait was not easy and far from smooth but with perseverance , grace & faith we were blessed with our Precious Emmalee Faith.

We were blessed beyond our dreams and prayers. My little Emmalee so amazing and special. I knew right away God had designed her for big things. She is truly a beam of "son"shine. Never caught without a smile or a giggle. She is a daily reminder  of Gods strength in her. Faithful and armed with the spirit and perseverence.

Six years ago she started having  breathing difficulties and infection after infection. At that time we had no idea that we would be where we are today. She has  gone from Dr. to Dr. with multiple proceedures, tests and surgeries. The last 5 years she has been admitted every year once or more.During this time she  has struggled to breathe especially at night........

How it has all occured and all she has endured.......

In 2004-2005 she was having difficulty breathing and fevers all the time  we went to see a local ENT who recommended her to have her adenoids out. Of course I asked then about tonsils as well and was reassured that it was a greater risk for bleeding and she would be fine.She was admitted December 2005 and all went well. We returned home for another 4months of  recurrent sinusitis, fevers, infections,and yes struggling to breathe. Then re-admitted March 2006 for sinus irrigation and nasl swellling(turbinates-tissue of the nose) obstructing her ablility to brethe. She continued with all these symptoms yet for another 7 months when  we saw a new ENT Dr. At this time em was miserable with drainage coming out of her eyes, fever, still diffculty breathing. All treaments not completely effective. Antibiotics monthly, nasal sprays.......October 2006 we met Dr. McMeany , callous but good ( so I thought), where over the next 3 years would be my sheer growth in Faith. Primarily for the care He provided/ or not and all He put us thru.  He doubted her need of his services. After surgery irrigation, biopsy and  reducing the tissue in her nose He reported  severe  and impressive swelling and drainage. Over the next year she still struggled being sick,on antibiotics 30-45 days at a time home sinus rinses stuffy unable to smell breathe tired. Her nightimes were always extreme. Most night sleeping upright on the couch. This year I had continually said to her team of Dr.'s  

 "She  almost needs something to help her at night, she really struggles trying to breathe" 

 Once more Ignored and certainly not listened to. We pressed thru with the Grace of God. Calling Dr.s going to appointments looking for a plan to treat her and help her.  We continued on until October 2007.......... Mcmeany decided it was time to open up her sinuses to help her and she had sinus surgery. All went well and we returned home.She did well. The couple of days at home were rough. SHe was uncomfortable and having complications. Calling her doctor and trying to explain her struggles. I was encouraged and had been over the months to just reposition her and stimulate her throughout the night. He stated to me" that it was uncommon and He had never encountered anything of the sort in all of His practice" Sweetest em was sleeping and trying to move air to breathe every breath was agnal. Without his support we were in an emergent position for her. We as parents opted to take her in. This was a blessing. She fell asleep while reading cloudy with a chace of meatballs. A book ill remember forever. This is when on monitors at the hospital and not at home on our couch .. They captured just what she had been doing night after night at home. She did not respond to breathing masks, or oxygen and they were going to have to intubate. Instead they stimulated her and she awoke. She was then admitted to ICU for apnea. Mcmeany showed up with apologies......

The last 3 years All of the same things coninue without much medical attention or care for her. So  night after night  watching over her sleep. Some nights on her bipap machine others unable to use due to swelling of her nasal passges. Without bipap she gets about 50 min asllp a night. ......

to be continued