OUR STORY

OUR STORY

Seven years ago My husband and I spent some time waiting to become parents and be blessed with the gift of Parenthood. The wait was not easy and far from smooth but with perseverance , grace & faith we were blessed with our Precious Emmalee Faith.

We were blessed beyond our dreams and prayers. My little Emmalee so amazing and special. I knew right away God had designed her for big things. She is truly a beam of "son"shine. Never caught without a smile or a giggle. She is a daily reminder  of Gods strength in her. Faithful and armed with the spirit and perseverence.

Six years ago she started having  breathing difficulties and infection after infection. At that time we had no idea that we would be where we are today. She has  gone from Dr. to Dr. with multiple proceedures, tests and surgeries. The last 5 years she has been admitted every year once or more.During this time she  has struggled to breathe especially at night........

How it has all occured and all she has endured.......

In 2004-2005 she was having difficulty breathing and fevers all the time  we went to see a local ENT who recommended her to have her adenoids out. Of course I asked then about tonsils as well and was reassured that it was a greater risk for bleeding and she would be fine.She was admitted December 2005 and all went well. We returned home for another 4months of  recurrent sinusitis, fevers, infections,and yes struggling to breathe. Then re-admitted March 2006 for sinus irrigation and nasl swellling(turbinates-tissue of the nose) obstructing her ablility to brethe. She continued with all these symptoms yet for another 7 months when  we saw a new ENT Dr. At this time em was miserable with drainage coming out of her eyes, fever, still diffculty breathing. All treaments not completely effective. Antibiotics monthly, nasal sprays.......October 2006 we met Dr. McMeany , callous but good ( so I thought), where over the next 3 years would be my sheer growth in Faith. Primarily for the care He provided/ or not and all He put us thru.  He doubted her need of his services. After surgery irrigation, biopsy and  reducing the tissue in her nose He reported  severe  and impressive swelling and drainage. Over the next year she still struggled being sick,on antibiotics 30-45 days at a time home sinus rinses stuffy unable to smell breathe tired. Her nightimes were always extreme. Most night sleeping upright on the couch. This year I had continually said to her team of Dr.'s  

 "She  almost needs something to help her at night, she really struggles trying to breathe" 

 Once more Ignored and certainly not listened to. We pressed thru with the Grace of God. Calling Dr.s going to appointments looking for a plan to treat her and help her.  We continued on until October 2007.......... Mcmeany decided it was time to open up her sinuses to help her and she had sinus surgery. All went well and we returned home.She did well. The couple of days at home were rough. SHe was uncomfortable and having complications. Calling her doctor and trying to explain her struggles. I was encouraged and had been over the months to just reposition her and stimulate her throughout the night. He stated to me" that it was uncommon and He had never encountered anything of the sort in all of His practice" Sweetest em was sleeping and trying to move air to breathe every breath was agnal. Without his support we were in an emergent position for her. We as parents opted to take her in. This was a blessing. She fell asleep while reading cloudy with a chace of meatballs. A book ill remember forever. This is when on monitors at the hospital and not at home on our couch .. They captured just what she had been doing night after night at home. She did not respond to breathing masks, or oxygen and they were going to have to intubate. Instead they stimulated her and she awoke. She was then admitted to ICU for apnea. Mcmeany showed up with apologies......

The last 3 years All of the same things coninue without much medical attention or care for her. So  night after night  watching over her sleep. Some nights on her bipap machine others unable to use due to swelling of her nasal passges. Without bipap she gets about 50 min asllp a night. ......

to be continued